One-page profile of a person with autism – Jennie

Image of One-page profile of a person with autism – Jennie

What others like and admire about me

  • Great sense of humour
  • Affectionate
  • Honest
  • Creative
  • Determined
  • Great fun to be with

What’s important to me

o Jennies iPad and iPod available and working at all times.
o Having straws and leaflets to hand and collecting them.
o Having butterfly kisses and hugs when Jennie initiates.
o To be listened to and have people respond to what Jennie says.
o To have treats and ice cream when out and about.
o Not to be rushed, go at Jennies pace. Having her own space when she wants it. Jennies things being left where she leaves them and not moved.
o Spending time with family at weekends and seeing them some evenings for tea.
o Knowing when she will see her staff team. Being in control of what happens in her flat and Jen choosing what she does.
o Visiting places like Chester Zoo, museums, theatre trips, cinema, the seaside, farms etc at least once a week.
o Being active most days by going for walks in the countryside, horse riding, zumba classes, aquafit and trampolining.
o Time to be creative at her flat every week go to local art classes and make pottery to decorate.
o Spending time with her friends Rhian and Laura and eating out with them each month.

How best to support me

o To have healthy snacks around for Jennie to have and to support her with portion sizes.
o A visual timetable so Jennie can see
o what is happening now and next.
o For people around Jennie to know and understand and how to respond to her communication.
o Having time on her own and for
o staff to listen out to check Jen is OK.
o Visual communication — gestures etc. (e.g. showing car keys).
o Ensure enough time for what Jennie wants to do so that she is not rushed.
o Plan well with Jennie and support her to do what is important to her and review any changes.
o If unsure whether to speak — say nothing.
o If you need to say something important to Jen, say “good listening” or” look at (your name)...”.

Jennie's story

My daughter Jennie is twenty-two years old. She has a great sense of humour, is affectionate, creative, honest, determined and fun to be with. She has a lovely home, close family and friends and enjoys art classes, horse riding and trampolining. Jennie used to be described as ‘challenging’ until she started using one-page profiles and positively changed her life and the way people perceive her.

Jennie has autism and learning disabilities and has worked hard to achieve her independent lifestyle. The one-page profiles she has used over the years have helped her todo this by communicating what is important to her and how people can support her to do what makes her happy and healthy. She is a very impressive young woman.

Jennie’s first one-page profile was used as a ‘top tips’ for everyone in her life to get to know her better, provide consistency in support and communicate with Jennie in the way that was best for her. At the time, Jennie wasn’t able to dictate much verbally but her voice ran throughout and we produced the one-page profile using our in-depth knowledge of what was important to her and how best to support her by closely watching her behaviour and what it was telling us. It was shared with the rest of her family and everyone who supported her as well as teachers, social workers, doctors, coaches, instructors and even her hairdresser! People who saw it commented on how useful it was and some even helped add to it by saying what they liked and admired about Jennie.

One of the things we realised when we started using person-centred thinking tools with Jennie was that despite having a fun seeking personality, she had few friends of her own. Most people outside of her family were paid to be in her life. Having a one-page profile and identifying what was important to her has empowered Jennie to try new activities and develop new friendships. It has put her in the driving seat to make more choices in her life. Jennie even used her one-page profile to show to prospective support staff when she was picking her team for her new flat. It gave them an easy to understand picture about Jennie and meant that she was able to communicate very early on how best they could support her.

As Jennie’s independence has grown living in her own home, the one-page profiles have changed with her. What is important to Jennie and how she needs supporting has changed significantly but this has all been led by Jennie and the people around her keeping her profiles accurate, up to date and always reflecting Jennie’s voice.

Having one-page profiles has enabled Jennie to truly be in control of her own life. Decisions are Jennie led, not service, organisation or support worker led! Importantly, they have also changed the way Jennie is introduced and perceived. Jennie is no longerreferred to as ‘challenging’. Now she is described as happy, active and independent. Thanks to Jennie’s one-page profile her positive reputation precedes her and the things that are important to Jennie are kept at the centre of everything that she does.